Every individual deserves equal treatment, especially when it comes to healthcare needs. Regardless of income, race, sexual orientation, gender identity, or personal beliefs, every person should have the right to be heard by their healthcare providers. This means being your own health advocate to meet those needs and arming yourself with the knowledge to do so. Read on to learn how to stand up for yourself in the medical world.
The Real Dangers Of Medical Gaslighting
If you’re not already familiar with the psychological term gaslighting, it’s a form of manipulation. Medical gaslighting is when a healthcare provider dismisses a patient’s concerns, such as pain. In such a case, a patient will be told, “It’s all in your head,” or “You’re just getting older,” If a patient is overweight, they may told to simply lose weight to take care of the problem. When you know your pain is real, but you’re being told it isn’t, this is medical gaslighting.
Medical gaslighting is dangerous and has even proven deadly. A 2021 study by the National Institute of Health concluded that women and people of color are more likely to experience medical gaslighting, resulting in cancers and cardiac diseases being diagnosed much later compared to men. This means by the time a proper diagnosis is rendered, it’s too late for life-saving treatment, and, therefore, they experience a higher mortality rate. Being your own health advocate could be a matter of life or death.
How to Be Your Own Health Advocate
Booking an appointment at the right time can make a difference. If you deal with chronic pain, tell the receptionist what your symptoms are. If possible, try to book an appointment in the morning at the beginning of the week. That way, your healthcare provider may be more refreshed and ready to listen without feeling rushed. Come prepared with your concerns, and write a list if you need to remember, noting when the symptoms started. The information that you provide will be crucial to promoting communication as well as proper treatment.
Bringing a trusted friend, family member, or spouse with you is okay. That way, they can help you take notes or remember what was said. Also, you’ll have a built-in chaperone. Prioritize your questions and concerns since it can be easy to forget the most essential points once you’re in an appointment. Don’t be afraid to ask questions, especially if something is unclear. Your health is your first priority. Get clarity on any concerns or confusion that you may have.
What To Do if You’re Not Being Heard
The first tactic you can try as a health advocate is being assertive with your language. Don’t be rude, as that will likely get you nowhere, but you can be firm with your words, such as, “I want to make sure that I’m being clear with you about my concerns.” or “I have questions that I need answers to.” It could be a matter of emphasizing your concerns. If that doesn’t work, you have every right to a second opinion. Never hesitate to seek out a new provider if you feel that you are not getting the attention, advice, or treatment that you require.
If you do end up switching healthcare providers, always get a copy of your medical records first, which you have a right to do so. This is probably the most vital information to know as a health advocate. In the United States, if a healthcare provider violates the Federal Law Restricting the Release of Medical Information, you can directly complain to the U.S. Department of Health and Human Services.
Wrapping Up
Remember, your healthcare provider is rendering a service to you, maintaining your health. While you, as the patient, also play an active role in that part, it should be considered a professional partnership. If the healthcare provider isn’t holding up their end of the bargain in that partnership, you must know how to be your own health advocate. Take an active role in your treatment from the start and educate yourself.
Disclaimer: This article is intended simply to provide information. It does not replace the medical advice of a physician. Please speak with your doctor if you have any questions or concerns.
